Monday, April 21, 2008

Waiting for Test Results

I had lab work to test my kidney function today. It is just a blood and urine test and I should know the results by Wednesday. I am still feeling very good and haven't had any issues related to donating.
Greg's creatinine is ranging from 1.7 to 1.9 and the doctors said this is fine and normal until his body adjusts. They are also still adjusting his meds and that causes some fluctuation. This range is much better than when he was diagnosed and his creatinine was over 14! His blood sugar has gone up recently (over 300). This is not great news but it happens. His father is diabetic and although Greg had no sign of diabetes before the transplant, some of the meds he has to take have no doubt played a part in this. It went up after his prednisone and Prograf dosages went down. He now checks his sugar 3X/day and is controlling it with diet and exercise. He was told by the doctors that he is to walk for 45 minutes daily and that will help. They haven't come right out and said that he is now diabetic but I think that by having him monitor his blood sugar they think it could happen. Other than that, he is doing well!
I am pasting some info below that I copied from the Living Donors Online site about a study to assess long term outcomes after living kidney donation below. It is interesting and I would have signed up for it if it was offered before my surgery. Anyway, it is something to think about if you are considering donation in any of the states mentioned.


If you are a potential living kidney donor who will donating in Minnesota, Maryland, Iowa, Ohio, or Northern California, the following study may be of interest.
The Assessing Long Term Outcomes after Living Kidney Donation (ALTOLD) study is looking for volunteers who are planning to donate a kidney, and are willing to participate in a study to closely examine the effects of kidney donation on health.
To participate, you must be considering donation at one of the following transplant centers: -- University of Minnesota Medical Center-Minneapolis, MN-- Mayo Clinic-Rochester, MN-- University of Maryland-Baltimore, MD-- Johns Hopkins Hospital-Baltimore, MD-- University of Iowa-Iowa City, IA-- Hennepin County Medical Center-Minneapolis, MN -- The Ohio State University Medical Center-- University of California San Francisco-San Francisco, CA
The Assessing Long Term Outcomes after Living Kidney Donation (ALTOLD) study is looking for volunteers who are planning to donate a kidney, and are willing to participate in a study to closely examine the effects of kidney donation on health.
What we know:•The short term risk of dying from surgery is about 3 in 10,000.•Studies to date indicate that kidney donors are generally healthy.•Studies may have failed to detect small effects of donation on the risk for kidney and heart disease.
What we wish to learn:•Whether kidney donation may affect kidney function over the years.•Whether kidney donation may affect risk factors for heart disease, diabetes, and other problems.
What is the ALTOLD? ALTOLD will compare 200 kidney donors with 200 two-kidney controls for 3 years. The study will do very accurate measurements of kidney function and risk factors for heart disease and strokes. ALTOLD is being carried out at 8 centers in the US and it is sponsored by the National Institutes of Health.
What is involved?
•Donors and their controls have 5 half-day visits to the research center over 3 years.•During each visit a medical check-up, an accurate test to measure kidney function, and blood tests to assess the risk for heart disease and strokes are done.•At the end of 3 years blood pressure is measured at home for 2 days with an automated device.•Some may have additional studies, if they choose.•Abnormal test results are given to participants, if they choose.•The study will pay each participant $150 per visit, plus travel costs.
If you are interested in participating in this study, please contact the study coordinator nearest you:
University of Minnesota Medical Center-Minneapolis, MNAnn West University of Minnesota 420 Delaware Street SE MMC 736 Minneapolis, MN 55455 Telephone: 612-625-5424 Email: annwest@umn.edu
Mayo Clinic-Rochester, MNHeidi TorgersonMayo Clinic Transplant CenterTelephone: 507 538-2664
University of Maryland-Baltimore, MDDenyse BreaultUniversity of Maryland-School of MedicineDivision of Nephrology22 S. Greene St., Rm N3W 143Baltimore, MD 21201Telephone: 410-706-4111Email: dbreault@medicine.umaryland.edu
Johns Hopkins Hospital-Baltimore, MDKim KahanTelephone: 410-502-1556Email: kkahan1@jhem.jhmi.edu
University of Iowa-Iowa City, IAHeather Ann Muster, MDDivision of NephrologyUniversity of IowaIowa City, IA 52242Telephone: 319-356-3500Hennepin County Medical Center-Minneapolis, MN Lisa BerndtEmail: Lisa.berndt@hcmed.org
Ohio State University-Columbus, OHThe Ohio State University Medical CenterComprehensive Transplant Center Clinical ResearchRoom 243 Atwell Hall 453 W. 10th Ave.Columbus, Ohio 432101-800 293-8965
University of California San Francisco-San Francisco, CAVeronica CarneroTelephone: 415-353-1592Email: carnerov@surgery.ucsf.edu
Best wishes,Jennifer MartinNational Kidney Foundationjenniferm@kidney.orghttp://www.livingdonors.org/

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